Saturday, September 20, 2014

Mile 22 with Basal Cell Nevus Syndrome

It is August 12, 2014. I am thinking I am getting laser ablation (mini eye lift) to my eyelids. I have myself beyond excited because I think I will look 25 again. 

I get to my eye specialist only to find out the 10 or so baby basal cells are getting removed by using a microscopic laser scalpel type device. Bummer!!  No "25 again" for me - at least for now.  

For this procedure my eyelids are sanitized and then coated with a numbing cream. My eye doctor assures me that if the pain is too bad we can do the numbing  injections. He prefers to use the cream because it does not cause the area to swell like the injections do.  The cream is allowed to work so in 30 minutes we begin. It seemed to only take a minute or two and felt no worse than a mosquito bite. When he was finished he gave me a mirror and the areas he removed were little red dots. So tiny in fact they do not show in my photograph.




My eyes were itchy most of the afternoon by bedtime I had no symptoms to even know I had had a procedure that day. 

The evening did bring bad news. My brother in law, Keith, has been battling cancer since 2002. he has been in remission twice. This third battle has proven too much for modern medicine to combat. He is on hospice effective immediately and our prayer is for a miracle healing at best and if that is not God's will then let him live to see his only daughter married on August 30. I would love to share a picture of me with him but he is a very private man and asked me not to share any photographs.  I could not love him more if he was my blood brother, he was a divine connection  for me. I am sure I will get at minimum detention when I get to heaven. I told God, "I am ready take me. Let Keith see his children and grandchildren grow up.".

His strength declined rapidly and he left to be with Jesus on September 1. So now his heavenly birthday is the same as my son's earthly birthday. I called my surgeon and he rescheduled me to Wednesday, September 10th. Heart break and stress are not good companions. I was admitted into the hospital Saturday morning with severe nausea, after extensive testing the conclusion is I had a heart episode some time late the prior Wednesday evening or early Thursday morning. 

I was released Monday, September 8th with a special MRI of my heart scheduled Tuesday, September 23. There is old damage visible on my heart, from a heart attack in 2000 and something else they need to see better along the one wall of my heart. There is now a concern about a fibroid on the wall of my heart. So a second call to my surgeon and my basal surgery is now postponed to September 24. So there you have it. I am sorry that I had such a lapse in my posting but my attention was needed elsewhere.


Take Away nugget: All of us need certain things from people closest to us, and not all people are able to give it ti us. LOOK for your divine connections

Heading for Mile 22 part 2



It is August 5th and I am feeling much better. The Dr.ordered sabbatical is evidently just what I needed.

I am still healing very well and quickly. I get daily facial massages to help the new skin become less tight. At this rate there will be no need for any scarf or bandages at my niece's wedding on August 30.



Mile 21 is gellin and the biopsied site is healed



 Mile 21 second site also gellin nicely



























Mick Jagger on Left



One week til Mile 22. A laser procedure on my eyelids. One thing that is nice is that from behind I am looking pretty normal. I have to grow hair strategically to cover what my husband used to call Mick Jagger on the left in the photo.









Take Away Nugget:   Learn to separate yourself from the busyness of life and spend time with people that matter most to you.

Heading for Mile 22 part 1

July 31, 2014 wouldn't you know I woke up in my crabby pants. I have had several restless nights and have slept more in my recliner than my bed. I have to be honest most of it was my own fault as I got a phone call yesterday telling me my biopsy from Mile 21 was positive. So of course there is at least one more surgery. 

My husband informed me that I needed to breathe because he was certain I had graduated to my bitchy britches by 10 am. I told him I would try. God forgive me I failed miserably.

I got to the surgeon's office to find out he was running over an hour behind. (I am breathing) My new nurse came in to see me and she brought me samples of three kinds of Amish popcorn. Now I felt like a heel for my current attitude and last weeks. We had talked about several different things last week during my surgery. I had told her I love love love popcorn but can rarely have it since my colon surgery in 2012. She told me about the kind she buys and said if I could only enjoy it occasionally I might as well enjoy what she thought was the best. What a kind gesture.

As I waited, I wondered how many times my extensive surgeries caused people to wait for long periods of time for their follow up appointments. I chose a better attitude. So an hour and a half past my appointment time I got to see the surgeon.

Once my surgeon and I got together we decided on a plan. He believes that my insurance will not allow him to do treatments other than surgery for my cancer.  He advises me to see my dermatologist for other treatments.  


Mile 21 is circle on left
Mile 23 will be the spot circled on the right
He wants to wait til September 3rd to do surgery, Mile 23, on the spot he biopsied. This is to allow the Mile 21 surgery to heal as much as possible as bandaging will most likely overlap.  So he told me to enjoy my summer and my niece's upcoming wedding as he sent me out the door.




I will see my eye surgeon on August 12th for the laser treatment on my eyelids. Then I will follow up with my regular dermatologist on September 17th to plan and schedule laser or photo dynamic therapy on my head. We also have to get a plan together to clean up my back.

I still get a lot of questions about taking inhibitors or some other treatments. I have been told by my team and a rep for the company that they have had success stopping new growth and getting rid of smaller or superficial tumors. Having been misinformed for so long, I have some large tumor sites.  


Take away nugget: We often make the mistake of being overly concerned about what is happening in our circumstances when our priority should be what's happening in our hearts.