Saturday, September 20, 2014

Heading for Mile 22 part 1

July 31, 2014 wouldn't you know I woke up in my crabby pants. I have had several restless nights and have slept more in my recliner than my bed. I have to be honest most of it was my own fault as I got a phone call yesterday telling me my biopsy from Mile 21 was positive. So of course there is at least one more surgery. 

My husband informed me that I needed to breathe because he was certain I had graduated to my bitchy britches by 10 am. I told him I would try. God forgive me I failed miserably.

I got to the surgeon's office to find out he was running over an hour behind. (I am breathing) My new nurse came in to see me and she brought me samples of three kinds of Amish popcorn. Now I felt like a heel for my current attitude and last weeks. We had talked about several different things last week during my surgery. I had told her I love love love popcorn but can rarely have it since my colon surgery in 2012. She told me about the kind she buys and said if I could only enjoy it occasionally I might as well enjoy what she thought was the best. What a kind gesture.

As I waited, I wondered how many times my extensive surgeries caused people to wait for long periods of time for their follow up appointments. I chose a better attitude. So an hour and a half past my appointment time I got to see the surgeon.

Once my surgeon and I got together we decided on a plan. He believes that my insurance will not allow him to do treatments other than surgery for my cancer.  He advises me to see my dermatologist for other treatments.  


Mile 21 is circle on left
Mile 23 will be the spot circled on the right
He wants to wait til September 3rd to do surgery, Mile 23, on the spot he biopsied. This is to allow the Mile 21 surgery to heal as much as possible as bandaging will most likely overlap.  So he told me to enjoy my summer and my niece's upcoming wedding as he sent me out the door.




I will see my eye surgeon on August 12th for the laser treatment on my eyelids. Then I will follow up with my regular dermatologist on September 17th to plan and schedule laser or photo dynamic therapy on my head. We also have to get a plan together to clean up my back.

I still get a lot of questions about taking inhibitors or some other treatments. I have been told by my team and a rep for the company that they have had success stopping new growth and getting rid of smaller or superficial tumors. Having been misinformed for so long, I have some large tumor sites.  


Take away nugget: We often make the mistake of being overly concerned about what is happening in our circumstances when our priority should be what's happening in our hearts. 

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